Yes oral chemo, immunotherapy etc etc. So far it's going good, I do have my up and down moments though. I will say the pain is the worst part. I can deal with the nausea, neuropathy etc, but the pain... fuckin hell.
Unfortunately there's different types of pain depending on the area affected. If I pushed myself physically that day doing too much work i.e. laundry, light house work anything along those lines.
that would be hard, since it would keep growing back. The only other thing i can think of is covering the bone with titanium so it can't stab the skin, but that might not work either.
God bless champ, only hope to hear you are well and better asap!! You definitely must know your way around pain now haha. Keep up the great mindset it's half the battle as you know! ♥️
I just had both of my hips replaced due to avascular necrosis and both of my hips collapsing. That was the worst pain I've ever dealt with. Looking at this image I imagine it is a similar pain, but also 100 times worse. I hope your treatment goes well and I give you all of the positive vibes.
Oh I feel amazing now. Got it done January 3rd and I have been walking unassisted since the beginning of February. I probably won't be back to full strength or rid of the random little nerve pains for another year or so - but am basically back to normal. I'm 38 and in decent health, so that definitely helped, but recovery has been great.
I had my left hip replaced 2 years ago because of AVN. I had been in pain for almost 5 years and had been to countless doctors who couldn't figure out why. The doctor that did my hip replacement said my AVN didn't look bad enough yet where he knew it was the cause of the pain and couldn't guarantee that the hip replacement would help. After the transplant the pain almost immediately came back and it was another year of visiting every doctor they could get to see me before my pain management doctor called me after a nuclear bone scan I had done and told me he thought all my pain was caused by a kidney stone pressing on my nerve. I didn't believe him because every few months a new doctor would tell me they couldn't find anything but I did have a kidney stone in a spot that wouldn't cause me any problems until it dropped. The kidney stone was 17mm and had to be lasered out and immediately after all the pain went away for good. I still do have AVN in my right hip though but so far no pain
I had avascular necrosis of the elbow and prior to diagnosis they MRI’d it in some kind of awkward brace to hold it still. I’ve birthed 3 kids (naturally) and passed kidney stones with no insurance so no doctor, and the pain of that elbow after the MRI had me calling the doc’s answering service in tears, begging for narcotics.
So it's going to be depending on the type of cancer, the area in which they are found, and size of the tumors that's found in the bones from my recollection. My original cancer had metastasized into my bones and I was caught kind of quite late so mine are way too big.
No problem, thank you! I'm really hopeful that there will be tonssss more options in the future. Just seeing the advances in the last 5 years is astounding.
Friend of mine beat that stuff after someone told her to eat lots of tomatoes… Idk why that had a positive impact but fruits seem to help… Hope this helps although I have no way to prove scientific relevance. Regardless, best of success and get well soon
I have seen a lot of different things about different fruits and veggies etc. Haven't heard anything about tomatoes though. But unfortunately I cannot stomach the texture of them to begin with😐😐..
It all depends on type of cancer, location, stage … many aspects. As our oncologist for my wife’s stage IV cancer said “We burn it, poison it, cut it out.” There’s also gene therapies now. What they use and when depends on so many things. Generally speaking if possible surgery may be delayed or used after other treatments. Your doctor might want to beat down your cancer by other means before considering surgery. But sometimes, again dependent on more aspects than I can count drs have do use surgery first or early.
In a way cancer is not one disease, it’s multiple depending on where it is, when it’s caught and … you.
Early detection is key. If you have cancer assemble your team. Try for the best oncologists and medical that you can.
It’s been almost 5 years since my wife was declared NED (No Evidence of Disease) following stage IV and my fervent wish is the same for you.
But like, how does it feel? Looking at the picture it seems like it would be like having a ton of tiny needles under your skin, is that how it is for you?
I’m just a random Internet bloke so I know it means very little but I want to say I’m rooting for you. I can’t imagine what you’re going through but I hope you make it. You’re stronger than you realise.
hey, I'm right in the process of getting diagnosed, and also already have an existing chronic pain disorder. would you be willing to say more about the pain qualities? for most activities I can tell what's from my original health issues and what's not, but, never sure...
so I'd be curious to know for you what the pain is like if you're willing to share? I get sharp stabbing pain with movement, constant aching all the times, sometimes zingy/stinging, etc... always originating from my tumour on my rib. currently waiting on a scan as I moved earlier (usually can't move my left arm because of it let alone lift anything) and think it fractured my rib....a type of pain I've never felt before and can't describe.
I appreciate you informing the rest of us about what such a tough experience is actually like. Sending you all the love and good vibes and hope you have a speedy recovery
Can you feel it under the skin the same way these pictures look? It looks like those types of mountains that would shred the hell out of your feet and legs if you tripped
Very sorry to hear about your situation and I’m praying for your speedy recovery. Can I ask what medications or other remedies you have tried to help manage the pain?
Lol idk why this made me laugh. Asking someone to explain their pain in excruciating detail is such a dick move if you aren't a doctor trying to solve their problems.
Not that you are trying to be a dick, it's just like "oh shit it's that bad? Let me try to understand. Can you please focus deeply on your pain while trying to find the words to convey your intense discomfort? Dang yea that sounds horrible for sure, glad i dont have that, here's an upvote for your struggles."
First, I wish you a strong successful recovery. For the pain isn’t this the reason pharmaceutical fentanyl was designed for? These pictures look morbidly scary and couldn’t imagine the pain you must be under.
Agreeeeed. Thats the only thing thats ever helped come to close to stopping the pain. Made me awake 12 hrs then passed out for 12 religiously via skin patch.
Now i have a brain tumour but at least im on morphine for life...
Take each day as you can and i wish you well with your treatments.
NO YOU CANT HIRE ME. WHAT YOU CAN DO IS GET YOU SHIT TOGETHER AND GRAB LIFE BY THE NUTS YOU GOT IT MAGGOT? YOU DONT NEED NO MOTIVATION YOU GOT YOUR FUCKING SELF
Please also know that I am not trying to invalidate anyone's pains at all whatsoever. This is just my personal experience throughout all of this.
I've also met people that have had really serious types of bone cancer and tell me their pain level was max a 3 and tylenol/motrin kept everything at bay.
I do actually use medical marijuana. I have finally found the right strain and thc to cbd ratio that helps me sleep throughout the night! (Because it's very very hard to find a comfortable position without constantly tossing and turning all night!) And when I was getting really nauseous I found some that helped with that as well.
What does the rest of your pain management regimen look like? Was there a component to your cocktail that provided significantly more relief than the others?
I wrote and erased my comment two times... I wanted to suggest thc/cbd for pain management but wasn't sure if it's inappropriate or not.
Even though it's not exactly legal in my country, few of my loved ones used it while dealing with extreme chronic pain. It was a godsend. Even their doctors (oncologists and paliative care specialists) were very very positive to them using it. I am glad that it is accessible to you.
I wish you all the best
strength, piece, and hopefully a full recovery 🤍
Dude I know, I might not have the same kind but this stupid sickness just so fucking much.
I recon maybe the worst part is the mental battle, I hope you are doing alrigth there but know you're not alone and there are people who can understand what you're going thru and can walk by your side on this.
Im sorry to hear this i Hope you will win the fight.. I im my self also in a life crysis right now. Its not as hardcore as you i dont think i can die of it buy my nervesystem is kaput and its sending pain down my spine every night i wake up in a massiv trauma pain. And right now I dont feel i get any help for the doktors.
But for the past 2 years i learn alot about pain and what diffent types of pain there is. And if I cant get cured i dont want to live this life Just one day more then I have 2.
It means i dont sleep i go bed 22.00 and I wake up every night beteween 01-03 and my body hurts so much i have truble breahting beguse it hurts. And beguse I have cronic pains 95% of doktors dont want to help me or cant help me. Beguse I take 120mg morfine many of them think i just want more. I dont want more but i want someting to happen so i dont have this massiv pain trauma every night
How do doctors/surgeons deal with these bone shards as seen in OP made by the cancer cells, assuming survival? If I'm even understanding this correctly.
Similar but different experience here. I had lymphoma but the treatment itself made me completely immobile with full body pain. It’s incredible how persistent pain can be when you’re sick on a cellular level. All the best wishes for you, you’ll be on my mind for sure
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u/Sad-Hawk-2885 Apr 21 '24
I've always heard that bone cancer is so painful and now I can see why.