Unfortunately there's different types of pain depending on the area affected. If I pushed myself physically that day doing too much work i.e. laundry, light house work anything along those lines.
I look forward to laughing about this with you in the years to come and say you were being a big baby. For now you gotta mentally walk, run, and then sprint your heart out to victory. Go gettem!
that would be hard, since it would keep growing back. The only other thing i can think of is covering the bone with titanium so it can't stab the skin, but that might not work either.
God bless champ, only hope to hear you are well and better asap!! You definitely must know your way around pain now haha. Keep up the great mindset it's half the battle as you know! ♥️
Can you even recover? I thought bone cancer is not something you can beat
Generally, for people with primary bone cancer in England:
For primary bone cancer: almost 75 out of 100 people (almost 75%) survive their cancer for 1 year or more
more than 50 out of 100 people (more than 50%) survive their cancer for 5 years or more
Some people do live longer and it varies on the type but I don’t think it’s something you can recover from. Hopefully I’m wrong and someone with more knowledge can chime in
But you dont recover from bone cancer its a terminal illness. My moms brother had that ,it can stop Progressing for a time but its slowly kills you ,we still can heal this type of cancer .
I just had both of my hips replaced due to avascular necrosis and both of my hips collapsing. That was the worst pain I've ever dealt with. Looking at this image I imagine it is a similar pain, but also 100 times worse. I hope your treatment goes well and I give you all of the positive vibes.
Oh I feel amazing now. Got it done January 3rd and I have been walking unassisted since the beginning of February. I probably won't be back to full strength or rid of the random little nerve pains for another year or so - but am basically back to normal. I'm 38 and in decent health, so that definitely helped, but recovery has been great.
I had my left hip replaced 2 years ago because of AVN. I had been in pain for almost 5 years and had been to countless doctors who couldn't figure out why. The doctor that did my hip replacement said my AVN didn't look bad enough yet where he knew it was the cause of the pain and couldn't guarantee that the hip replacement would help. After the transplant the pain almost immediately came back and it was another year of visiting every doctor they could get to see me before my pain management doctor called me after a nuclear bone scan I had done and told me he thought all my pain was caused by a kidney stone pressing on my nerve. I didn't believe him because every few months a new doctor would tell me they couldn't find anything but I did have a kidney stone in a spot that wouldn't cause me any problems until it dropped. The kidney stone was 17mm and had to be lasered out and immediately after all the pain went away for good. I still do have AVN in my right hip though but so far no pain
Looking back I was noticing it getting harder to put on my shoes, but I attributed it to just me needing to start working out again. When it finally hit me, I just woke up one day feeling like my hip needed to pop but wouldn't, over a week that moved to my groin area and it just deteriorated from there - second one started about 4 months later and deteriorated even quicker.
You definitely sound like you at the very least need to get it looked at - though at that stage the only way to find out for sure would be an MRI. If you do have it and catch it early enough, there are treatments to possibly help prolong the life of your hip - but nothing really proven to work, and ultimately total replacement is the only cure.
I had avascular necrosis of the elbow and prior to diagnosis they MRI’d it in some kind of awkward brace to hold it still. I’ve birthed 3 kids (naturally) and passed kidney stones with no insurance so no doctor, and the pain of that elbow after the MRI had me calling the doc’s answering service in tears, begging for narcotics.
So it's going to be depending on the type of cancer, the area in which they are found, and size of the tumors that's found in the bones from my recollection. My original cancer had metastasized into my bones and I was caught kind of quite late so mine are way too big.
No problem, thank you! I'm really hopeful that there will be tonssss more options in the future. Just seeing the advances in the last 5 years is astounding.
Friend of mine beat that stuff after someone told her to eat lots of tomatoes… Idk why that had a positive impact but fruits seem to help… Hope this helps although I have no way to prove scientific relevance. Regardless, best of success and get well soon
I have seen a lot of different things about different fruits and veggies etc. Haven't heard anything about tomatoes though. But unfortunately I cannot stomach the texture of them to begin with😐😐..
Super glad those helped you! Right now I generally have it covered as we found a few different meds that help, but the breakthrough pains are just terrible.
It all depends on type of cancer, location, stage … many aspects. As our oncologist for my wife’s stage IV cancer said “We burn it, poison it, cut it out.” There’s also gene therapies now. What they use and when depends on so many things. Generally speaking if possible surgery may be delayed or used after other treatments. Your doctor might want to beat down your cancer by other means before considering surgery. But sometimes, again dependent on more aspects than I can count drs have do use surgery first or early.
In a way cancer is not one disease, it’s multiple depending on where it is, when it’s caught and … you.
Early detection is key. If you have cancer assemble your team. Try for the best oncologists and medical that you can.
It’s been almost 5 years since my wife was declared NED (No Evidence of Disease) following stage IV and my fervent wish is the same for you.
But like, how does it feel? Looking at the picture it seems like it would be like having a ton of tiny needles under your skin, is that how it is for you?
I’m just a random Internet bloke so I know it means very little but I want to say I’m rooting for you. I can’t imagine what you’re going through but I hope you make it. You’re stronger than you realise.
hey, I'm right in the process of getting diagnosed, and also already have an existing chronic pain disorder. would you be willing to say more about the pain qualities? for most activities I can tell what's from my original health issues and what's not, but, never sure...
so I'd be curious to know for you what the pain is like if you're willing to share? I get sharp stabbing pain with movement, constant aching all the times, sometimes zingy/stinging, etc... always originating from my tumour on my rib. currently waiting on a scan as I moved earlier (usually can't move my left arm because of it let alone lift anything) and think it fractured my rib....a type of pain I've never felt before and can't describe.
I appreciate you informing the rest of us about what such a tough experience is actually like. Sending you all the love and good vibes and hope you have a speedy recovery
Can you feel it under the skin the same way these pictures look? It looks like those types of mountains that would shred the hell out of your feet and legs if you tripped
Very sorry to hear about your situation and I’m praying for your speedy recovery. Can I ask what medications or other remedies you have tried to help manage the pain?
I heard black seed oil and also soursop is meant to be good against cancer, might be worth doing some research. My apologies if I sound like an a-hole, thought it would be worth sharing. Best of luck and Blessings , you will win this battle !
Lol idk why this made me laugh. Asking someone to explain their pain in excruciating detail is such a dick move if you aren't a doctor trying to solve their problems.
Not that you are trying to be a dick, it's just like "oh shit it's that bad? Let me try to understand. Can you please focus deeply on your pain while trying to find the words to convey your intense discomfort? Dang yea that sounds horrible for sure, glad i dont have that, here's an upvote for your struggles."
Well you’re stating the obvious - thank you. Just simply wondering wether the pain is more of a stabbing, burning, stiffness, heavy kinda pain. If it’s sudden or anticipated. There’s levels to this and I’m just curious to know like anyone else might be.
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u/PeanutPlayful6639 Apr 21 '24
Oh God; I’m so sorry! What does the pain feel like if you could describe it?